Reka in gore za obrežnim rastjem
Reka in gore za obrežnim rastjem
In this article
  1. What OCD is and who treats it
  2. Family accommodation: when you become part of the ritual
  3. Why reassurance works for such a short time
  4. What is happening to you in the meantime
  5. Supporting the person, not the disorder
  6. Exercise: an accommodation map
  7. How to encourage treatment
  8. Where this does not apply
  9. Where relationship therapy fits in
  10. What to remember

It is eleven at night. You are both in bed, the light is off, when she turns to you once more: “Are you absolutely sure I switched the cooker off?” You say you are. You saw her do it. Two minutes later: “But did you actually look, or do you just think you did?” You could say you looked. You could get up and go and check, the way you did yesterday and the day before. Or you could say you have had enough — and then listen to her crying until two in the morning and feel like the worst person in the world.

Anyone who lives alongside someone with obsessive-compulsive disorder knows this moment. No choice feels right. If you give in, you feel you are feeding something. If you don’t, you feel cruel. And because you love them, most of the time you do whatever stops the distress fastest.

I am writing this for you, not for the person who has OCD. It is about why helping is so complicated, what research knows about families living with this disorder, and how you can stay beside someone without becoming part of their rituals. One important thing first, though: whether the person you love really has OCD is not something you can judge, and neither can I. This post is not meant for diagnosing anyone from home; it is meant to help you understand what is happening between the two of you.

What OCD is and who treats it

Obsessive-compulsive disorder is a mental disorder in which two things are intertwined. Obsessions are intrusive thoughts, images or doubts that return against the person’s will and cause intense anxiety. Compulsions are actions or mental rituals the person uses to try to reduce that anxiety: checking, washing, counting, repeating, arranging — and also asking other people whether everything is all right. There is more on how this loop is built in Obsessive-compulsive disorder: more than tidiness and cleanliness, and on the thoughts themselves in Intrusive thoughts: why you have thoughts that frighten you — and why they are not your character.

OCD is not rare. In a large American survey, about 2.3 per cent of adults met the criteria for it at some point in their lives (Ruscio et al., 2010). That means there are a great many families living alongside it — they simply seldom talk about it, because the disorder is often something people are ashamed to show.

The diagnosis is made by a psychiatrist or a clinical psychologist. As a psychological treatment, guidelines recommend cognitive behavioural therapy with exposure and response prevention, in which the person, with professional guidance, gradually faces what they fear without carrying out the ritual; alongside this or instead of it, a psychiatrist sometimes prescribes medication (NICE, 2005). To be clear: I do not provide this treatment. As a marriage and family therapist in training, I do not diagnose or treat OCD. What I can write about is what happens to a relationship around the disorder — and there you have more influence than you may think.

Family accommodation: when you become part of the ritual

The field has a name for what you do at eleven at night: family accommodation. It covers everything relatives do to ease the distress of the person with OCD or to avoid an argument: answering repeated questions, checking on their behalf, waiting for a ritual to finish, buying extra soap, changing clothes at the door, taking over the chores they avoid, or rearranging the whole family’s timetable.

The first study to measure this systematically was small but telling. Among 34 relatives of people with OCD, 88 per cent were accommodating the disorder in one way or another (Calvocoressi et al., 1995). Later reviews confirmed the picture: accommodation is not the exception but the rule (Lebowitz et al., 2012). So if you recognise yourself here, you are not weak and you have not made a mistake that others don’t make. You are doing what almost anyone does when they love someone and see them suffer.

The accommodation loop: how you become part of the ritualAccommodating is an understandable response to distress — and it feeds the disorder over time.1 · DISTRESSDoubt triggers fearthey cannot bear the doubtand ask you to check,to answer or to wait2 · ACCOMMODATIONYou do what is askedbecause you love them,it is late, and a row wouldcost more than five minutes3 · RELIEFA few minutes of calmfear drops, but the doubtreturns — with a newrequest, often a bigger oneWhat the disorder learns from thisThat doubt is unbearable and that the way to calm runs through you. Blame does not break the loop;an agreed, gradual step back from the rituals does — alongside treatment, not instead of it.

The trouble lies in what accommodation does over time. Two meta-analyses have shown that more accommodation goes together with more severe OCD symptoms (Strauss et al., 2015; Wu et al., 2016). Honesty is needed here: this is an association, not proof that families cause the disorder. The direction almost certainly runs both ways — the more severe the disorder, the more it demands of those around it, and the more they give, the fewer chances the person has to discover that anxiety passes without the ritual. Neither of you chose this loop. You both got caught in it.

Why reassurance works for such a short time

Reassurance needs careful handling, because it is easy to misunderstand. Comforting someone who is frightened is not a mistake; it is one of the most human things we know how to do. Co-regulation, settling in the presence of another person, is real and precious. With OCD, though, reassurance can turn into something else: a ritual that you perform on their behalf.

You can tell the difference by three things. The question is repeated although the answer has already been given. The answer has to be said in one exact way, otherwise it “doesn’t count”. And the relief lasts a shorter and shorter time. Ordinary comfort leaves a person satisfied; reassurance that has become a compulsion leaves them hungry. Why that is so is explained in more detail in Checking and reassurance-seeking: why the relief is so short-lived.

For your side of things, one point matters most: the disorder is not looking for information, it is looking for certainty. And certainty is something you cannot give, because nobody has it. How many times would you have to say the cooker is off for it to be enough? If the answer is “once more”, the question is not really about the cooker.

What is happening to you in the meantime

Relatives of people with OCD often describe a mixture that is hard to admit to. Compassion and tiredness. Worry and anger. The feeling of tiptoeing around your own flat. Shame at dodging visitors with excuses. And guilt when you snap and say something you did not mean.

None of this means you love them too little. It means that you, too, are living with the disorder, and that it has a cost for you as well. Accommodation has two extremes, and families often swing between them: one week you do everything the disorder demands, the next you erupt from exhaustion, criticise and insist that they “just stop”. Neither helps — the first feeds the rituals, the second feeds shame, and shame feeds anxiety.

“Are you sure I locked the door?”
“I can see the doubt is gnawing at you again. I know how unpleasant that is.”
“Just say I did. Once.”
“I already have, once. We agreed I would answer that only once. But I’m staying right here with you.”
“So now you’re the one who isn’t helping me.”
“I understand it feels that way. I think you can get through this. Shall we go and make some tea together?”
(composite, not a real person)

This conversation is not easy, and in real life it rarely runs so smoothly. But the essence is in it: you are not turning the person down, you are turning down a role in the ritual. And you say so gently, not as a reproach.

Supporting the person, not the disorder

A useful line to draw in your mind is this: the person you love and their OCD are not the same thing. When you decline the tenth check, you are not saying “no” to them but to the disorder speaking through them. Many people with OCD know this line very well themselves — they know the fear is excessive, they just cannot stop. If you speak to them as an ally against the disorder rather than as an opponent, the conversation changes.

Eli Lebowitz, who studies family accommodation at Yale University, describes support as a combination of two messages: acknowledging the distress and showing confidence that the person can bear it. “I can see you’re very frightened” without the second part slides into pity. “You can do it” without the first sounds dismissive. Only together do they say: I take you seriously and I believe in you.

Supporting the person or supporting the disorderSame intention, different effect. Ask yourself who your action will have helped a month from now.ACCOMMODATING THE DISORDERCalms in the short term· answering the same question a tenth time· checking or washing on their behalf· waiting for the ritual and running late· changing family rules because of the fear· taking over the chores they avoidSUPPORTING THE PERSONStrengthens in the long term· saying you can see how hard it is· trusting they can bear the uncertainty· answering once, then staying beside them· helping to find treatment and going along· looking after yourself and the family tooA supportive statement has two partsAcknowledging the distress (“I can see you're scared”) + confidence (“I believe you can bear this”).

When it comes to stepping back from rituals, three rules are worth keeping. First: the change is discussed in a calm moment, never in the middle of distress. Second: it happens gradually, one thing at a time, not everything overnight. Third: the change is announced in advance and is never used as a punishment. A sudden, one-sided “from today I’m not answering you any more” can be very hard on a person with OCD and is more likely to damage the relationship than to help it.

Ideally, accommodation is reduced in agreement with the professional leading the treatment. A review of studies found that outcomes of OCD treatment are better when the family is involved, especially when the work targets accommodation itself (Thompson-Hollands et al., 2014). So if the person you love is in treatment, ask whether you could join one appointment and what you should be doing differently at home.

Exercise: an accommodation map

You can start this exercise today, and you don’t need anyone else for it. Its purpose is not to change anything straight away but first to see where you actually are.

  1. Keep notes for a week. Each evening, write down in a few lines what you did that day because of the disorder: which questions you answered, what you checked, what you waited for, what you gave up.
  2. Rate the cost of each. From 1 to 5: how much it costs you in time, nerves, sleep or relationships with other people. Some accommodations are tiny; others shape your life.
  3. Choose one small thing. Not the one that costs you most, but the one where change seems most doable — for example, answering the question about the lock once instead of five times.
  4. Say it in a calm moment. Use both parts of the supportive statement: “I know evenings are very hard for you. I believe you can bear the doubt. So from Monday I’ll answer once, and then I’ll stay with you without answering.” If they are in treatment, suggest they mention it to their therapist first.
  5. Keep to the agreement for a week, then look back. For the first few days the distress will probably be greater, not smaller. That is not a sign you are doing it wrong but an expected reaction to change. After a week, talk together about what was hardest and what worked.

If you meet more resistance than you can carry, that is information, not defeat. It means the step is too big, or that the two of you need professional guidance for it.

How to encourage treatment

Many people with OCD go years without seeking help. There are several reasons: shame about the content of their thoughts, fear of being seen as dangerous or mad, and the belief that treatment would be worse than the disorder. That is why pressure rarely works. It works better to talk about what you see and what worries you, not about what is wrong with them: “I can see how much time and energy this takes from you. I’d like you to have more peace. Would you see someone who works with this?”

Low clouds over a valley in morning light
You are not turning the person down, only a role in the ritual — and you stay beside them.

In Slovenia, the practical route usually runs through the person’s GP, who can refer them to a psychiatrist or a clinical psychologist. I have explained which professional does what in Psychotherapist, psychologist, psychiatrist: who does what and where to go. You can help with small things that lower the threshold: looking up information, offering to walk them to the waiting room, or writing down together what they will tell the doctor. The decision, however, remains theirs. You cannot treat an adult against their will — but you can change your part of the loop, and that sometimes shifts more than persuasion does.

More general guidance that applies here too is in How to help someone you love with anxiety — without burning out.

Where this does not apply

Everything above has limits, and I want to state them clearly, because the advice “don’t take part in rituals” quickly turns into a weapon.

First, accommodation is not the cause of OCD. The disorder has its own biological and psychological roots; the family did not create it and cannot remove it alone. Stopping accommodation is not treatment; it is only one of the conditions that help treatment work.

Second, boundaries are not set in an acute crisis. If the person you love says they cannot go on, or mentions suicidal thoughts, this is not the time to practise holding firm. You stay with them and you seek help together: in Slovenia, the mental health crisis line Klic v duševni stiski on 01 520 99 00 (7 pm to 7 am), the Samarijan helpline on 116 123 (24 hours a day), and 112 in an emergency.

Third, not every repeated question is OCD and not every favour is accommodation. People ask twice when they are tired, and we do each other favours because we care. If you start reading every request as a symptom, you will lose the warmth that keeps you there in the first place.

And fourth, boundaries are also there to protect you. Where children, your health or your safety are involved, you may set a limit whether or not it is the right moment for the disorder. Relatives facing other difficulties know a similar tension between supporting and sustaining a problem; it is the subject of When your partner is addicted: where support ends and enabling begins — although OCD and addiction are very different things and the comparison should not be stretched too far.

Where relationship therapy fits in

Treating OCD belongs with a psychiatrist or a clinical psychologist. What is left to one side is the relationship — and that needs a space of its own. Partners who for years have talked only about whether something is clean, locked or safe have often lost everything else that connected them. Parents of an adult child with OCD are torn between guilt and helplessness. Brothers and sisters feel overlooked.

In relational family therapy we look at how one member’s distress spills into relationships and how each person in the family carries their share. This does not replace treatment of the disorder. It can, however, be a place where you, as the relative, say how tired you are, where you and your partner talk about something other than rituals again, and where together you look for a way of being beside someone without losing yourself in it. If this speaks to you, you are welcome to write to me — sessions take place in person in Ljubljana, and I also work with English-speaking clients.

What to remember

  • Family accommodation is the rule in OCD, not the exception — and it is not your fault. It is a response to the distress of someone you love.
  • Reassurance that has to be repeated and lasts a shorter and shorter time is no longer comfort but part of the ritual.
  • Support has two parts: acknowledging the distress and trusting that the person can bear it.
  • Step back from rituals gradually, with warning and in a calm moment — ideally in agreement with the professional leading the treatment.
  • OCD is diagnosed and treated by a psychiatrist or a clinical psychologist; your task is not to treat it but to stay beside the person and look after yourself too.
Sources
  1. Calvocoressi, L., Lewis, B., Harris, M., Trufan, S. J., Goodman, W. K., McDougle, C. J., & Price, L. H. (1995). Family accommodation in obsessive-compulsive disorder. American Journal of Psychiatry, 152(3), 441–443. PubMed
  2. Lebowitz, E. R., Panza, K. E., Su, J., & Bloch, M. H. (2012). Family accommodation in obsessive-compulsive disorder. Expert Review of Neurotherapeutics, 12(2), 229–238. PubMed
  3. National Institute for Health and Care Excellence. (2005). Obsessive-compulsive disorder and body dysmorphic disorder: treatment (Clinical guideline CG31). London: NICE.
  4. Ruscio, A. M., Stein, D. J., Chiu, W. T., & Kessler, R. C. (2010). The epidemiology of obsessive-compulsive disorder in the National Comorbidity Survey Replication. Molecular Psychiatry, 15(1), 53–63. PubMed
  5. Strauss, C., Hale, L., & Stobie, B. (2015). A meta-analytic review of the relationship between family accommodation and OCD symptom severity. Journal of Anxiety Disorders, 33, 95–102. PubMed
  6. Thompson-Hollands, J., Edson, A., Tompson, M. C., & Comer, J. S. (2014). Family involvement in the psychological treatment of obsessive-compulsive disorder: A meta-analysis. Journal of Family Psychology, 28(3), 287–298. PubMed
  7. Wu, M. S., McGuire, J. F., Martino, C., Phares, V., Selles, R. R., & Storch, E. A. (2016). A meta-analysis of family accommodation and OCD symptom severity. Clinical Psychology Review, 45, 34–44. PubMed
Veronika Železnik

About the author

Veronika Železnik

Sem stažistka iz zakonske in družinske terapije pod supervizijo in diplomirana dramska igralka (AGRFT). Leta na odru so me naučila pozorno opazovati ljudi, izkušnja s kronično nespečnostjo pa me je pripeljala v terapijo in do odločitve, da človeka ne raziskujem skozi vloge, ampak v živem odnosu. Verjamem, da se sprememba zgodi v varnem in spoštljivem odnosu — o tem pišem tukaj. Več najdeš na strani My Approach.

Contact

Has living beside a loved one's OCD worn you out?

Treatment of the disorder belongs with a psychiatrist or clinical psychologist, but the relationship needs a space of its own. Write to me and we can look at what this is doing to you and between you.

Write to me